We're using this space to journal and update on Sam's brain tumor diagnosis.

Thank you for the love and support as we navigate life with a craniopharyngioma.

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Journal

Happy 2 weeks of recovery for Sam. He is doing so so well. Far exceeding our expectations of what we had prepared to work through. Sam is...

We arrived back in KC last evening. Sam is doing great and we all slept well in our own beds! Huge thank you to our neighbor friends who...

Whole new view -- Sam has been discharged from Colorado Childrens! A friend mentioned during a really hard patch there is a post-op...

The thing I am quickly learning is medical innovation is hard to decipher when you are walking the path right down through the middle of...

As expected, Jess and Chris are busy helping Sam with recovery so this post is brought to you by their friend, Katie. Apologies for the...

How long will Sam be in surgery? The surgery is transsphenoidal (entering through the nose) and they believe it will be 3-4 hours of...

We've hit the weirdest in between wait I've ever encountered. We're preparing to send our kid into brain surgery. What does one do with...

After what feels like endless q&a with some of the most brilliant minds I may ever encounter, Chris and I have made a path forward for...

We've finished our consult tour and have met with 4 teams: National (DC), CHoP (PHI), CHoC (DEN) and the Radiology-Oncology team here at...

The quick facts and a video link for the visual learners like myself. • Craniopharyngioma is rare -- about 1 in million. • Benign brain...

Here's a look back of the first month with a craniopharyngioma. August 14th - Consult in-person visit to CO Children's Hospital to see...

July 10, 2025 - How. What? What do you mean. Sam attended an all day outdoor day camp called OEL. The boys absolute favorite camp of...

Consider your brain a garden where beautiful wonderfully made things are grown all the time. Every once in awhile, a weed grows. A brain...